A Patient with Advanced Dementia

Citation: 

Pages 10 - 12

Authors: 

Melinda S. Lantz, MD

Case Presentation
Mr. P is an 87-year-old man who has had dementia of the Alzheimer’s type for more than ten years. He has lived with his daughter, Mrs. S, and her husband for the past seven years since the death of his wife. Mrs. S brings him to his primary care physician to ask if anything can be done to help him.

Mr. P requires assistance with bathing, dressing, and meals. He can eat foods such as sandwiches with his hands but can no longer hold utensils and must be hand-fed in order to consume enough food. He has been incontinent of bladder and bowel functions for the past three years and often takes off his adult diapers. Mr. P calls his daughter by his wife’s name, and Mrs. S feels that he doesn’t really recognize her or her husband. He speaks only a few words and often repeats the same word over and over again when people speak to him. Mrs. S has hired a private aide to help her provide care for her father, as he does not like to take a shower. He has difficulty transferring into the bathroom and needs a wheelchair to travel more than a few blocks from home.

Mrs. S worries that her father sleeps more than 12 hours a day and no longer appears to react to her, her children, or her grandchildren. He used to enjoy listening to jazz music and would smile and move around. Now, he no longer seems to appreciate that the music is playing. Mrs. S tries to keep Mr. P active, but he often sleeps through family visits, movies, music, and her attempts to read or talk to him.

Mr. P has a history of hypertension, coronary artery disease, congestive heart failure, hyperlipidemia, benign prostatic hypertrophy, and frequent urinary tract infections. His current medications include metoprolol 50 mg twice daily, lisinopril 10 mg daily, aspirin 81 mg daily, furosemide 40 mg daily, simvastatin 40 mg daily, and tamsulosin 0.4 mg daily. He also takes memantine 10 mg twice daily for dementia. Mrs. S reports that her father has difficulty swallowing pills, and even when she crushes the medications he only takes about half of them.

Mrs. S worries that her father is declining and asks if anything can be done to make him more animated. She promised her mother that she would never put her father in a nursing home, but now she wonders if he needs more care than she can provide. Mrs. S asks the doctor for advice about what to do for Mr. P in his severely impaired state.

Discussion
Erikson1 described the major crisis of late-life as “integrity versus despair.” Helping an older adult maintain integrity throughout the process of aging is a significant aspect of geriatric care. Dementia adds a new dimension to the task of maintaining integrity during a period of tremendous loss. Alzheimer’s disease (AD) is progressive in nature, with a gradual decline in all aspects of memory and function. For those patients who live longer, total dependence and loss of even the ability to recognize loved ones will result2-4 (Table I).

Dementia has a major impact on society. The costs of caring for persons with dementia exceed $100 billion per year in the United States alone, and that amount does not include the formidable costs of informal care provided by family members and loved ones.2,4 The emotional toll and burden of caring for a relative with dementia is immense. This includes emotional distress, economic burden, lost work time, and strain related to balancing the needs of child care and caregiving for the older adult.4

Families, and women in particular, provide 70-80% of care for frail older adults, with repercussions on the caregivers’ life and health.2,4 Primary caregivers are often spouses who are elderly and have medical problems themselves. Daughters frequently step in when spouses are not present.4 Caregivers must reconcile the demands of different spheres of life: personal; family; social; paid employment; and caring.



Anonymoussays: March 25.2010 at 12:22 pm

Eric Erikson's life stages, certainly the final stage of ego integrity versus dispair, implicitly assumes the there is insight in one's condition. There is a tallying-up of the positives and the negatives of past life, life course auditing, and the aggregate determins one's ego integrity (+) or despair (-). It is hard to imagine this process occurring in dementia, with such severe impairment of executive functiions. Thanks for a good article.
Dr. Albert Chen
Clinical Gerontologist

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Anonymoussays: April 17.2010 at 19:34 pm

This is a good article. People do not realize the importance of talking about those late stages. Talk about what happens when you really don't know to eat any more? Talk about when the swallowing becomes a problem. Do you want to be fed by tube? Do you want to be fed meals? I would just want to fade away personally. If I can't feed myself and if I am needing my diapers changed, I do not want somebody shoving food in my mouth. I personally want nothing done to make my life longer.

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anne loguesays: February 8.2011 at 11:26 am

I found the articles on advanced dementai very helpful and as one of the corespondents said, it is very imnportant to know about the final stage of life.
However, having lived through the final stage on my mother's life18 months ago I am still searching for honest information about her dying process. Her death was in no way peaceful and I am haunted still. If it hadn'e been for the medical knowledge of a close relative I would not have known to ask for sedation and I think my mother's death would have been prolonged.
Can anyone advise me about books/forums etc where I might find out what happened in her dying days?

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